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Resources

All the resources below come from the human subjects tutorial in the San Diego State University on-line training module - http://ori.hhs.gov/education/products/sdsu/

For historic examples of the use of human subjects in research from the same website click here (PDF).

Background

History of human radiation experimentation:

Department of Energy (DOE) Openness: Human Radiation Experiments

http://www.eh.doe.gov/ohre/index.html

Tuskegee syphilis experiments:

Story from National Public Radio, July 22, 2002:

http://www.npr.org/programs/morning/features/2002/jul/tuskegee/

CDC's Tuskegee Syphilis Study website:

Story from National Public Radio, July 22, 2002:

http://www.cdc.gov/nchstp/od/tuskegee/

Tuskegee Syphilis Study Legacy Committee website:

http://www.healthsystem.virginia.edu/internet/library/historical/medical_history/bad_blood/

Nuremberg Doctor's Trial:

United States Holocaust Museum (2):

http://www.ushmm.org/research/doctors/

http://www.ushmm.org/museum/exhibit/focus/warcrimetrials/

The Nuremberg Code (from NIH):

http://ohsr.od.nih.gov/guidelines/nuremberg.html

Stanley Milgram Experiments:

Dr. Thomas Blass' website about the life and work of Stanley Milgram:

http://www.stanleymilgram.com/

The Belmont Report

The Belmont Report (from NIH):

http://www.hhs.gov/ohrp/humansubjects/guidance/belmont.htm

The Belmont Report (from OHRP):

http://www.hhs.gov/ohrp/belmontArchive.html

Federal Regulations:

45 CFR 46 (from NIH):

http://ohsr.od.nih.gov/guidelines/45cfr46.html

Office for Human Research Protections Home Page:

http://www.hhs.gov/ohrp/

Shared Responsibilities

Stuttering /"Monster" Study of 1939:

Alliance for Human Research Protections (AHRP) compilation of articles:

http://www.ahrp.org/infomail/0601/11.php

Havasupai Diabetes Study

Link to the East Valley Tribune Newspaper - search archives for story entitled "Havasupai Tribe files $50M lawsuit against ASU" published on March 17, 2004:

http://www.eastvalleytribune.com

1950s Study on Wichita Jury Deliberations

Barnes, J.A. The Ethics of Inquiry in Social Science. Delhi: Oxford University Press: 1977.

Subject Involvement

Polyheme FAQ page (from the UCSD IRB):

http://irb.ucsd.edu/notices/polyheme/FAQs.htm

Privacy and Confidentiality

Tearoom Trade Study:

Humphreys, Laud: Tearoom trade; impersonal sex in public places, Chicago, Aldine Pub. Co., 1970.

"Undercover Freshman" study:

Nathan, Rebekah: My freshman year: what a professor learned by becoming a student. Ithaca, Cornell University Press, 2005.

Privacy and confidentiality issues in the social and behavioral sciences:

( available online: http://www.nap.edu/books/0309088526/html/)

Committee on National Statistics (CNSTAT) Board on Behavioral, Cognitive, and Sensory Sciences and Education (BCSSE). Protecting Participants and Facilitating Social and Behavioral Sciences Research. National Academies Press, 2003.

American Statistical Association Website:

http://www.amstat.org/

Deception in Research

APA Code of Ethical Principles of Psychologists and Code of Conduct

Deception in Research and Debriefing (Sections 8.07 and 8.08)

available: http://www.apa.org/ethics/code2002.html#8_07.

Online Ethics Center for Engineering and Science

"When is Deception Ethically Justified in Research?"

available: http://www.onlineethics.org/cms/10947.aspx

Baumrind, D. (1985). Research using intentional deception: Ethical issues revisited. American Psychologist. 40(2), 165-174.

Certificate of Confidentiality:

NIH information: